Grace's Condition

My sister and I were talking this morning and she suggested that since it's summer break and we aren't going to school, I could use this blog to help other families that may be struggling with a diagnosis.
The point will be to encourage other families. There are times when you may be so afraid that you don't know if you'll be able to go any further, but there isn't a choice, you just have to keep trudging on.
I realize that many people don't know about Grace's condition and although we live in a society that doesn't mind staring at someone with differences it seems that only young children will ask about them.
Apparently Grace is a very rare bird, and doesn't have a diagnosis. The closest condition that doctors label her with is a very atypical Congenital Myasthenia Gravis. Basically her nerves and muscles don't communicate. If you look up this condition you really won't get a picture of Grace as her condition is much more severe than the norm. Also, the tests she's had to confirm this diagnosis come back normal, so she really doesn't have a real case of mysthenia gravis.
Sounds so confusing, but all we know is somewhere in her body part of it speaks one language and the rest speaks another. try as we might we can't find an interpreture.
Even though she is weak and not able to do some things that the rest of us can, she's still an important part of our world. Her brain works perfectly fine. Her life may be a bit different from other 16 year olds but in many ways she's the same as others. She attends regular high school, has never fallen behind in her grade. She has friends, goes to functions, loves movies, is always texting, and yes has the regular teen attitude. Shes a regular kid, drives us crazy on some days and has us in stitches most other days.
Having a medical condition isn't who Grace is, it's just something she deals with on a day to day basis. So, if you found this blog because you have an ill family member, hang in there some days are tough, but most are great. More to come..........