Sharing

Just thought I'd share a few things I've learned from being Grace's mom. First off I'd say to trust your instincts. When Grace was a baby she was sent to a specialist that diagnosed her with a syndrome. Well, I looked up everything I could about the syndrome and was never as convinced as I should have been that she really had it.
When she was younger she could walk, although it was more of a march and she never could run. None of these physical limits were part of the syndrome, but I suppose I was in a bit of denial and just went along with what the doctor said. Turns out that nope, she didn't have anything even similar to that syndrome.
I kick myself some days for not searching for the right doctors for Grace sooner. But, when you're in the beginnings of something you can't see what's to come. I think you just do the best you know how to and watch and wait for the next stage in life.
I must also add, if you run into a medical "professional" that you don't feel right about, ask for another. On this note, I must first say that 99% of the nurses, doctors,therapists,lab and x-ray techs we've dealt with have been wonderful. There have however been those few that were horrible.
Grace had a physical therapist in one hospital call her a "big baby"........my big baby was nine years old, happened to have double pneumonia, had been intubated for 2 weeks, one of the intubations knocked out 3 teeth, had been laying in a ICU room for a month , and was awakened every 4 hours for chest x-rays. When Grace said that stretching her legs hurt she was called names. I asked to speak to the therapist outside Grace's room and let her and Grace's nurse know that the woman would not be returning to Grace's room.
I usually overlook things, but some days you just have to trust your instincts and take charge.
OK I've blathered on  enough, thought I'd post a pic of Grace, I think she was about 3 in this pic......It's one of my favorites, she's ALWAYS loved to shop.
P.S. when you see the pic you'll probably be able to hear her say "MOM!! Why did you post that hideous picture of me?" LOL